Individual Psychological and Family Resources of Mothers Raising Children with Disabilities

189

Abstract

An important task of clinical psychology is to study the resources of coping with difficult life situations and the stress of children with disabilities’ mothers. The purpose of the study is to analyze the differences between individual and family psychological resources of mothers raising disabled children and mothers of neurotypical children and to identify groups of mothers by the level of their psychological resources. 392 mothers took part in the study using the author's socio-biographical questionnaire, the self-activation of personality method, a short version of the resilience test, the COPE questionnaire, and the family viability assessment scale (139 raise disabled children (medium age 42.58+7.4), 253 – healthy children (medium age 42.63+8.4)). It is shown that mothers of children with disabilities estimate the intensity of events related to diseases and problems in relationships higher than mothers of healthy children. Mothers of children with disabilities are distinguished by a reduced level of resilience resources, some components of the self-activation resource (physical activity), the severity of instrumental resources, such as: the concentration on emotions, active coping, suppression of competing activities, planning, an active cognitive coping style. But the size of the effect in the differences is small. Based on cluster analysis, three groups of mothers were identified, characterized by a peculiar profile of individual and family psychological resources: "resource", "moderately resource", "insufficiently resource". The specific features of each of the profiles and the possibilities of applying the obtained data in practice are shown.

General Information

Keywords: difficult life situations, coping resources, mothers of children with disabilities, mothers of conditionally healthy children, resilience, family viability

Journal rubric: Empirical Research

Article type: scientific article

DOI: https://doi.org/10.17759/cpse.2023120305

Funding. The reported study was funded by Russian Science Foundation (RSF), project number 22-28-00820 (Psychological resources of socially vulnerable groups in the face of modern challenges (on the example of people with disabilities and their families).

Received: 01.09.2023

Accepted:

For citation: Odintsova M.A., Lubovsky D.V., Prudnikova M.G., Borodkova V.I. Individual Psychological and Family Resources of Mothers Raising Children with Disabilities [Elektronnyi resurs]. Klinicheskaia i spetsial'naia psikhologiia = Clinical Psychology and Special Education, 2023. Vol. 12, no. 3, pp. 98–120. DOI: 10.17759/cpse.2023120305. (In Russ., аbstr. in Engl.)

References

  1. Kim K.A., Kadyrov R.V. Roditel'skii stress i vospitanie rebenka s detskim tserebral'nym paralichom: obzor zarubezhnykh issledovanii [Parental stress and bringing up a child
    with cerebral palsy: A foreign studies review]. Klinicheskaya i spetsial'naya psikhologiya = Clinical Psychology and Special Education, 2022. Vol. 11, no. 4, pp. 1‒29 DOI: 10.17759/cpse.2022110401 (In Russ., abstr. in Engl.)
  2. Kuftyak E.V. Zhiznesposobnost’ sem’i: teoriya i praktika. Meditsinskaya psikhologiya v Rossii, 2014, no. 5 (28). URL: http://www.medpsy.ru/mprj/archiv_global/2014_5_28 /nomer/nomer09.php (Accessed: 14.10.2023). (In Russ.)
  3. Leont'ev D.A. Mnogourovnevaya model' vzaimodeistviya s neblagopriyatnymi obstoyatel'stvami: ot zashchity k izmeneniyu. In Materialy III Mezhdunarodnoi nauchnoi konferentsii «Psikhologiya stressa i sovladayushchego povedeniya: resursy, zdorov'e, razvitie» (g. Kostroma, 26–28 sentyabrya 2013 g.) = Multilevel model of interaction with adverse circumstances: from defense to change. Psychology of stress and coping: proceedings of III International Scientific Practical Conference. (Kostroma. September 26-28. 2013). Kostroma: Publ. of Kostroma State University, Vol. 1, pp. 258‒261. (In Russ.)
  4. Leontiev D.А. Samoregulyatsiya, resursy i lichnostnyi potentsial [Autoregulation, resourses, and personality potential]. Sibirskii psikhologicheskii zhurnal = Siberian Journal of Psychology, Vol. 62, pp. 18‒37. DOI: 10.17223/17267080/62/3 (In Russ., abstr. in Engl.)
  5. Nesterova А., Khitryuk V. Stigmatizatsiya i predrassudki v otnoshenii roditelei, vospityvayushchikh rebenka s rasstroistvami autisticheskogo spektra [Stigmatization and prejudice towards parents of children with autuistic spectrum disorders]. Vestnik Moskovskogo gosudarstvennogo oblastnogo universiteta. Seriya: Psikhologicheskie nauki = Bulletin of Moscow Region State University. Series: Psychology, 2018, no. 4, pp. 50‒61. DOI: 10.18384/2310-7235-2018-4-50-61 (In Russ., abstr. in Engl.)
  6. Odintsova M.A., Gusarova E.S., Aismontas B.B. Zhiznesposobnost' sem'i v stressogennykh situatsiyakh invalidnosti v zarubezhnykh issledovaniyakh [Family resilience in stressful situations of disability in foreign studies]. Sovremennaya zarubezhnaya psikhologiya = Journal of Modern Foreign Psychology, 2020. Vol. 9, no. 1. pp. 29‒38. DOI: 10.17759/jmfp.2020090103 (In Russ., abstr. in Engl.)
  7. Odintsova M.A., Lubovsky D.V., Gusarova E.S. et al. Zhiznestoikost', samoaktivatsiya i koping-strategii materei v usloviyakh invalidnosti rebenka kak vyzova [Resilience, self-activation and coping strategies of mothers in the of their children’s disability]. Konsul’tativnaya psikhologiya i psikhoterapiya = Counseling Psychology and Psychotherapy, 2023. Vol. 31, no. 1, pp. 79‒106. DOI: 10.17759/cpp.2023310104 (In Russ., abstr. in Engl.)
  8. Odintsova M.A., Radchikova N.P. Razrabotka metodiki samoaktivatsii lichnosti [The development of personal self-activation inventory]. Psikhologicheskie issledovaniia = Psychological Studies, 2018. Vol. 11, no. 58. DOI: 10.54359/ps.v11i58.316 (In Russ., abstr. in Engl.)
  9. Osin E.N., Rasskazova E.I. Kratkaya versiya testa zhiznestoikosti: psikhometricheskie kharakteristiki i primenenie v organizatsionnom kontekste [A short version of the Hardiness Test: Psychometric properties and organizational application]. Vestnik Moskovskogo universiteta Ser. 14. Psikhologiya = Lomonosov Psychology Journal. Series 14. Psychology, 2013, no. 2, pp. 147‒165 (In Russ., abstr. in Engl.)
  10. Prodovikova A.G., Degtyannikova D.A. Zhiznestoikost', psikhologicheskoe blagopoluchie i tsennostnye orientatsii materei, vospityvayushchikh detei s ogranichennymi vozmozhnostyami zdorov'ya [Resilience, psychological well-being and values of mothers raising children with disabilities]. Sotsial'nye i gumanitarnye nauki: teoriya i praktika = Social Sciences and Humanities: Theory and Practice, 2022, no. 1 (6), pp. 239‒256. (In Russ., abstr. in Engl.)
  11. Rasskazova E.I., Gordeeva T.O., Osin E.N. Koping-strategii v strukture deyatel'nosti i samoregulyatsii: psikhometricheskie kharakteristiki i vozmozhnosti primeneniya metodiki COPE [Coping strategies in the structure of activity and self-regulation: Psychometric Properties and Applications of the COPE Inventory]. Zhurnal Vysshei shkoly ekonomiki = Psychology. Journal of the Higher School of Economics, 2013. Vol. 10, no. 1, pp. 82‒118. (In Russ., abstr. in Engl.)
  12. Sergienko A.I., Kholmogorova А.В. Posttravmaticheskii rost i koping-strategii roditelei detei s ogranichennymi vozmozhnostyami zdorov'ya [Post-traumatic growth and coping strategies of parents of children with disabilities]. Konsul'tativnaya psikhologiya i psikhoterapiya = Counseling Psychology and Psychotherapy, 2019. Vol. 27, no. 2, pp. 8‒26. DOI: 10.17759/cpp.2019270202 (In Russ., abstr. in Engl.).
  13. Tokarskaya L.V., Tenkacheva T.R., Lapteva V.V. Issledovanie zhiznestoikosti roditelei, vospityvayushchikh detei s tyazhelymi narusheniyami rechi [Research on the resilience of parents raising children with severe speech impairments]. Pedagogicheskoe obrazovanie v Rossii = Pedagogical Education in Russia, 2021, no. 6, pp. 80‒90. DOI: 10.26170/2079-8717_2021_06_09
  14. Kholmogorova А.В., Sergienko A.I., Gerasimova A.A. Ustanovka na podderzhku sub"ektnoi pozitsii rebenka i posttravmaticheskii rost u roditelei detei s OVZ [attitude to support the child's subjective position and posttraumatic growth in parents of children with disabilities]. Кul'turno-istoricheskaya psikhologiya = Cultural-Historical Psychology, Vol. 16, no. 1, pp. 13‒24. DOI: 10.17759/chp. 2020160102 (In Russ., abstr. in Engl.).
  15. Andrioni F., Coman C., Ghita R.-C. et al. Anxiety stress, and resilience strategies in parents of children with typical and late psychosocial development: Comparative analysis. International Journal of Environmental Research and Public Health, Vol. 19 (4), 2161. DOI: 10.3390/ijerph19042161
  16. Asa G.A., Fauk N.K., Ward P.R. et al. Psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in Belu district, Indonesia PLoS One, 2021. Vol. 16 (5), e0251274. DOI: 10.1371/journal.pone.0251274
  17. Beckers L.W.M.E., Smeets R.J.E.M., van der Burg J.J.W. Therapy-related stress in parents of children with a physical disability: a specific concept within the construct of parental stress. Disability and Rehabilitation, 2021. Vol. 43 (8), pp. 1185–1192. DOI: 1080/09638288.2019.1646815
  18. Chung J.O.K., Li W.H.C., Ho L.L.K. et al. The association of resilience with way of coping, psychological well-being and quality of life in parents of children with cancer. International Journal of Environmental Research and Public Health, 2023. Vol. 20 (10), 5765. DOI: 10.3390/ijerph20105765
  19. Crosswell A.D., Sagui-Henson S., Prather A.A. et al. Psychological resources and biomarkers of health in the context of chronic parenting stress. International Journal of Behavioral Medicine, 2022. Vol. 29 (2), pp. 175–187. DOI: 10.1007/s12529-021-10007-z
  20. Ezeonu C.T., Obu D.C., Daniyan O.W. et al. Coping strategies of caregivers of persons with a disability attending a special education Center in Abakaliki, Southeast Nigeria: A cross-sectional study. The Pan African Medical Journal, 2021. Vol. 39, no. 249. DOI: 10.11604/pamj.2021.39.249.26884
  21. Farhadi A., Bahreini M., Moradi A. et al. The predictive role of coping styles and sense of coherence in the post-traumatic growth of mothers with disabled children: A cross-sectional study. BMC Psychiatry, 2022. Vol. 22 (1), 708. DOI: 10.1186/s12888-022-04357-5
  22. Gardiner E., Mâsse L.C., Iarocci G. A psychometric study of the Family Resilience Assessment Scale among families of children with autism spectrum disorder. Health and Quality of Life Outcomes, 2019. Vol. 17 (1), 45. DOI: 10.1186/s12955-019-1117-x
  23. Geuze L., Goossensen A. Caring for children with profound intellectual and multiple disabilities: images and metaphors expressed by Dutch parents. Disability & Society, 2023. DOI: 1080/09687599.2023.2164846
  24. Geuze L., Goossensen A., Schrevel S. “Continuously struggling for balance”: The lived experiences of Dutch parents caring for children with profound intellectual and multiple disabilities. Journal of Intellectual & Developmental Disability, 2023. Vol. 48 (4). DOI: 10.3109/13668250.2022.2073707
  25. Harvey C. The uncanny effect of disability: Uncomfortable maternal love for a disabled child. Contemporary Psychoanalysis, 2020. Vol. 56 (1), pp. 1–28. DOI: 1080/00107530.2020.1717218
  26. Kaniel S., Siman-Tov A. Comparison between mothers and fathers in coping with autistic children: a multivariate model. European Journal of Special Needs Education, 2011. Vol. 26 (4), pp. 479–493.DOI: 10.1080/08856257.2011.597186
  27. Kurowska A., Kózka M., Majda A. “How to cope with stress?” Determinants of coping strategies used by parents raising children with intellectual disabilities, other developmental disorders and typically developing children. A cross-sectional study from Poland. Journal of Mental Health Research in Intellectual Disabilities, 2021. Vol. 14 (2), pp. 1–27. DOI: 10.1080/19315864.2020.1832166
  28. Lin F.-Yi, Rong J.-R., Lee T-Y. Resilience among caregivers of children with chronic conditions: A concept analysis. Journal of Multidisciplinary Healthcare, 2013. Vol. 6, pp. 323–333. DOI: 2147/JMDH.S46830
  29. Priego-Ojeda M., Rusu P. Emotion regulation, parental stress and family functioning: Families of children with disabilities vs normative families. Research in Developmental Disabilities, 2023. Vol. 139, 104548. DOI: 10.1016/j.ridd.2023.104548
  30. Salleh N.S., Tang L.Y., Jayanath S. et al. An explorative study of affiliate stigma, resilience, and quality of life among parents of children with Autism Spectrum Disorder (ASD). Journal of Multidisciplinary Healthcare, 2022. Vol. 15, pp. 2053–2066. DOI: 2147/JMDH.S376869
  31. Schimschal S.E., Cleary M., Kornhaber R.A. et al. Psychometric evaluation of the Grit Psychological Resources Scale (GPRS). Journal of Multidisciplinary Healthcare, 2023. Vol. 16, pp. 913–925. DOI: 2147/JMDH.S401652
  32. Schimschal S.E., Visentin D., Kornhaber R. et al. Development of a scale to measure the psychological resources of grit in adults. Nursing & Health Sciences, 2022. Vol. 24 (3), pp. 752–763. DOI: 10.1111/nhs.12973
  33. Teicher J., Moore C., Esser K. et al. The experience of parental caregiving for children with medical complexity. Clinical Pediatrics, 2022. DOI: 10.1177/00099228221142102
  34. Van der Mark E.J., Conradie I., Dedding C. W. M. et al. ‘We create our own small world’: Daily realities of mothers of disabled children in a South African urban settlement. Disability & Society, 2019. Vol. 34 (1), pp. 95–120. DOI: 10.1080/09687599.2018.1511415
  35. Widyawati Y., Otten R., Kleemans T. et al. Parental resilience and the quality of life of children with developmental disabilities in Indonesia. International Journal of Disability Development and Education, 2022. Vol. 69 (6), pp. 1946–1962. DOI: 10.1080/1034912X.2020.1834078
  36. Xiong T., McGrath P.J., Stewart S.H. et al. Risk and protective factors for posttraumatic stress and posttraumatic growth in parents of children with intellectual and developmental disorders. European Journal of Psychotraumatology, 2022. Vol. 13 (1), 2087979. DOI: 10.1080/20008198.2022.2087979
  37. Zinn J.O. ‘In-between’ and other reasonable ways to deal with risk and uncertainty: A review article. Health, Risk & Society, 2016. Vol. 18 (7-8), pp. 348–366. DOI: 10.1080/13698575.2016.1269879

Information About the Authors

Maria A. Odintsova, PhD in Psychology, Docent, Head of the Department of Psychology and Pedagogy of Distance Learning, Faculty of Distance Learning, Moscow State University of Psychology & Education, Moscow, Russia, ORCID: https://orcid.org/0000-0003-3106-4616, e-mail: mari505@mail.ru

Dmitry V. Lubovsky, PhD in Psychology, associate professor, Professor of the UNESCO Department “Cultural and Historical Psychology of Childhood”, Moscow State University of Psychology & Education, Moscow, Russia, ORCID: https://orcid.org/0000-0001-7392-4667, e-mail: lubovsky@yandex.ru

Marianna G. Prudnikova, MA in Psychology, Leading Manager of the Psychological, Methodological and Advisory Assistance to Parents Sector of the University Multidisciplinary Psychological Center, Moscow State University of Psychology & Education, Moscow, Russia, ORCID: https://orcid.org/0009-0001-1504-3383, e-mail: prudnikovamg@mgppu.ru

Victoria I. Borodkova, MA in Psychology, Moscow State University of Psychology & Education, Moscow, Russia, ORCID: https://orcid.org/0009-0000-6518-4750, e-mail: borodkovavi@fdomgppu.ru

Metrics

Views

Total: 719
Previous month: 58
Current month: 32

Downloads

Total: 189
Previous month: 16
Current month: 2