Augmentative and Alternative Communication and Alleviating of the Behavioral Difficulties of Adolescents with Severe Multiple Developmental and Behavioral Disorders

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Abstract

This article is relevant in the framework of the study educational training importance and the ability to communicate with adolescents with severe multiple developmental and behavioral disorders (SMDD) in adults working for inpa- tient social service institution (ISSI). The survey of communication and behavioral skills in adolescents with SMDD living in ISSI presented. The study involved 60 employees, 28 adolescents with SMDD, 20 parents of special children. Methods used: Communication Matrix, cyclogram «Review of the day», evaluation sheet «Table of interests». A spe- cific case of employee training and introduction of Augmentative and Alternative Communication techniques into an individual form of work with the student and the impact of these activities on improving her behavior demonstrated. The experimental data presented in this article can be used for work with ISSI to increase the communication skills available to students with SMDD. Also, the article includes the description of the work on improvement of the qual- ity of life of adolescents with SMDD that are in inpatient institutional care. It has been established that children and adolescents with SMDD living in the ISSI have persistent impairments in mastering skills, identifying their com- munication mechanisms.

General Information

Keywords: adolescents with special needs, development, employment types, augmentative and alternative commu-nication

Journal rubric: Education & Intervention Methods

Article type: scientific article

DOI: https://doi.org/10.17759/autdd.2022200307

Funding. The reported study was conducted in a joint project by the Centre for Socialization and Integration of People with Developmental Disabilities and Their Families «Common Childhood» and the Center for Social Support and Rehabilitation of Disabled Children «House of Children» with the help of the Regional Non-Profit Social Organization «Center for Curative Peda- gogics» funded by the Department of Social Protection as part of the project «Moscow as a Kind City».

Received: 28.11.2022

Accepted:

For citation: Gnedenko Y.S., Karanevskaya O.V. Augmentative and Alternative Communication and Alleviating of the Behavioral Difficulties of Adolescents with Severe Multiple Developmental and Behavioral Disorders. Autizm i narusheniya razvitiya = Autism and Developmental Disorders, 2022. Vol. 20, no. 3, pp. 65–79. DOI: 10.17759/autdd.2022200307. (In Russ., аbstr. in Engl.)

References

  1. Basilova T.A. Neslozhnoe, oslozhnennoe i slozhnoe narushenie razvitiya u detei [The light, the complicated and the difficult developmental disorder in children]. In Spetsial’naya pedagogika i spetsial’naya psikhologiya: Kollektivnaya monografiya [Special education and special psychology: Collective monography]. (In Russ.) Moscow: Publ. LOGOMAG, 2013. Pp. 120—124. ISBN 978-5-905025-19-8.
  2. Bgazhnokova I.M. Vospitanie i obuchenie detei i podrostkov s tyazhelymi i mnozhestvennymi narusheniyami razvitiya: Programmno-metodicheskie materialy [Upbringing and education for asolescents with severe and multiple developmental disorders: instructional materials]. (In Russ.) Moscow: Publ. VLADOS, 2007. 181 p.
  3. Bitova A.V. et al. Osnovnye napravleniya realizatsii mezhdistsiplinarnogo vzaimodeistviya v okazanii pomoshchi detyaminvalidam, ostavshimisya bez popecheniya roditelei [The main pathways of interdisciplinary interactions implementation in providing assistance to disabled children deprived of parental care]. (In Russ., abstr. in Eng.) Al’manakh Instituta korrektsionnoi pedagogiki [Almanac Institute of Special Education], 2020, no. 41, pp. 53—62.
  4. Bondar’ T.A., Karanevskaya O.V. Gotovnost’ k ispol’zovaniyu sredstv al’ternativnoi i dopolnitel’noi kommunikatsii spetsialistami detskikh domov-internatov [Willingness to use augmentative and alternative communication by the specialists of children’s homes]. (In Russ., abstr. in Eng.) Al’manakh Instituta korrektsionnoi pedagogiki [Almanac Institute of Special Education], 2020, no. 41, pp. 86—96.
  5. Vygotskii L.S. Osnovnye problemy defektologii [Basic problems of defectology]. In Vygotskii L.S. Osnovy defektologii [Basics of defectology]. (In Russ.) Saint Petersburg: Publ. Lan’, 2003. Pp. 22—59. ISBN 5-8114-0481-6.
  6. Gnedenko Ya.S., Karanevskaya O.V., Kochetkova T.V Ispol’zovanie sredstv al’ternativnoi i dopolnitel’noi kommunikatsii v psikhologo-pedagogicheskom soprovozhdenii detei i podrostkov s tyazhelymi i mnozhestvennymi narusheniyami razvitiya i narusheniyami povedeniya v usloviyakh statsionarnykh uchrezhdenii sotsial’nogo obsluzhivaniya [The Use Of Means Of Alternative And Additional Communication In The Psychological And Pedagogical Support Of Children And Adolescents With Severe And Multiple Developmental Disorders As Well As Behavioral Disorders In Stationary Social Service Institutions]. Vospitanie i obuchenie detei s narusheniyami razvitiya [Upbringing and Education for Children with Developmental Disorders], 2022, no. 2, pp. 52—66. DOI:10.47639/2074-4986_2022_2_52
  7. Golovchits L.A. K probleme terminologii: «slozhnye, mnozhestvennye, kompleksnye...» narusheniya razvitiya [On the problem of terminology: “complicated, multiple, complex…” developmental disorders]. (In Russ.) Defektologiya [Defectology], 2011, no. 3, pp. 3—11.
  8. Zhigoreva M.V. Deti s kompleksnymi narusheniyami v razvitii: pedagogicheskaya pomoshch’ [Children with complex developmental disorders: Educator’s support. Manual for higher education students]. (In Russ.) Moscow: Publ. Akademiya, 2006. 240 p. ISBN 5-7695-2947-4.
  9. Legostaeva A.A. (compiler), Bitova A.L. (ed.) Zhizn’ kak zhizn’: kak pomogat’ osobomu cheloveku zhit’ dostoino v usloviyakh internata [A normal life: how to help a special person live with dignity in an institution]. (In Russ.) Moscow: Publ. Terevinf, 2019. 64 p.
  10. Kvyatkovska M. Gluboko neponyatye deti: Podderzhka razvitiya detei s tyazhelymi i glubokimi narusheniyami intellekta [Deeply misunderstood children: Support in the development for children with severe and deep intellectual disorders]. (In Russ.) Saint Petersburg: Publ. Skifiya, 2016. 368 p. ISBN 978-5-00025-066-2.
  11. Lisina M.I. Obshchenie, lichnost’ i psikhika rebenka [Communication, personality and the psyche of a child]. (In Russ.) Moscow: Publ. Institute for practical psychology; Voronezh: Publ. MODEK, 1997. 384 p. ISBN 5-89395027-5.
  12. Tsarev A.M. (gen. ed.) Obrazovanie obuchayushchikhsya s tyazhelymi narusheniyami razvitiya: Sbornik materialov vserossiiskoi nauchno-prakticheskoi konferentsii s mezhdunarodnym uchastiem 6—8 noyabrya 2018 [Education for students with severe developmental disorders: Proceedings of the national scientific and practical conference with international participation, 6—8 November 2018]. (In Russ.) Pskov: Publ. Pskov State University, 2018. 232 p. ISBN 978-5-91116-797-4.
  13. Bgazhnokova I.M. (ed.) Obuchenie detei s vyrazhennym nedorazvitiem intellekta: programmno-metodicheskie materialy [Education for children with acute intelligence underdevelopment: training materials]. (In Russ.) Moscow: Publ. VLADOS, 2007. 181 p. ISBN 978-5-691-01598-4.
  14. Prikaz Ministerstva obrazovaniya i nauki Rossiiskoi Federatsii ot 19.12.2014 № 1599 «Ob utverzhdenii federal’nogo gosudarstvennogo obrazovatel’nogo standarta obrazovaniya obuchayushchikhsya s umstvennoi otstalost’yu (intellektual’nymi narusheniyami)» [Order of the Ministry of education and science of Russian Federation from 19.12.2014 no. 1599 “On the approval of the federal state educational standard for students with intellectual disabilities”] [Web resource]. (In Russ.) 70 p. URL: http://www.consultant.ru/cons/cgi/online.cgi?req=doc&base=LAW&n=17531 6&fld=134&dst=1000000001,0&nd=0.8857983240018963#0895508737761141 (Accessed 01.02.2022).
  15. Prikaz Minobrnauki Rossii ot 09.11.2015 g. № 1309 «Ob utverzhdenii Poryadka obespecheniya uslovii dostupnosti dlya invalidov ob”ektov i predostavlyaemykh uslug v sfere obrazovaniya, a takzhe okazaniya im neobkhodimoi pomoshchi» (Zaregistrirovano v Minyuste Rossii 08.12.2015 № 40000) [Order of the Ministry of education of Russia from 09.11.2015 g. no. 1309 “On the approval of the Order of providing the conditions for making facilities and services of education accessible for disabled people, as well as providing necessary support”] [Web resource]. (In Russ.) URL: http://www.consultant.ru/document/cons_doc_LAW_190309/ (Accessed 01.02.2022).
  16. Serkina A.V., Grunicheva S.I., Meshcheryakova I.A. Sravnitel’nyi analiz vzaimodeistviya detei s tyazhelymi mnozhestvennymi narusheniyami razvitiya s raznymi vzroslymi v uchrezhdenii dlya detei-sirot [Interaction of children with severe developmental disorders with different types of adults in the orphanage]. (In Russ., abstr. in Eng.) Al’manakh Instituta korrektsionnoi pedagogiki [Almanac Institute of Special Education], 2018, no. 35, pp. 60—67.
  17. Von Tetzchner S., Martinsen H. Vvedenie v al’ternativnuyu i dopolnitel’nuyu kommunikatsiyu: zhesty i graficheskie simvoly dlya lyudei s dvigatel’nymi i intellektual’nymi narusheniyami, a takzhe s rasstroistvami autisticheskogo spectra [Introduction to Symbolic and Augmentative Communication]. (Transl. into Russ.) Moscow: Publ. Terevinf, 2015. 423 p. ISBN 978-5-4212-231-8.
  18. Federal’nyi zakon «Ob obrazovanii v Rossiyskoi Federatsii» ot 29 dekabrya 2012 goda № 273-ФЗ (poslednyaya redaktsiya) [Federal law “On education in Russian Federation” from 29.12.2012 no. 273-ФЗ (latest revision)] [Web resource]. (In Russ.) URL: http://www.consultant.ru/document/cons_doc_LAW_140174/ (Accessed 01.02.2022).
  19. Frost L., Bondy A. Sistema al’ternativnoi kommunikatsii s pomoshch’yu kartochek (PECS): rukovodstvo dlya pedagogov [Picture Exchange Communication System Training Manual]. (Transl. into Russ.) Moscow: Publ. Terevinf, 2011. 416 p. ISBN 978-5-4212-0026-0.
  20. Chulkov V.N. Razvitie i obrazovanie detei so slozhnymi narusheniyami razvitiya [Development and education of children with complex developmental disorders]. In Nazarova N.M. (ed.) Spetsial’naya pedagogika [Special pedagogy: manual for higher education students]. (In Russ.) Moscow: Publ. Academia, 2000. Pp. 332—344. ISBN 5-7695-0551-6.
  21. Communication Matrix [Web resource]. (In Eng.) URL: https://www.communicationmatrix.org/ (Accessed 01.02.2022).

Information About the Authors

Yana S. Gnedenko, psycholohist, Center for Socialization and Integration of People with Developmental Disabilities and Their Families «Common Childhood», Regional Non-Profit Social Organization «Center for Curative Pedagogics», Moscow, Russia, ORCID: https://orcid.org/0000-0001-7068-7985, e-mail: yana-gnedenko@yandex.ru

Olga V. Karanevskaya, PhD in Education, associate professor of the Chair of Special Education and Psychology, Moscow City University, educator, Regional Non-Profit Social Organization «Center for Curative Pedagogics», Moscow, Russia, ORCID: https://orcid.org/0000-0002-9800-4768, e-mail: olg_ka@mail.ru

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